Because scleroderma is so rare, you might not know much about it. It can be hard to find understandable or comprehensive information on scleroderma and difficult to know what it all means.
More than Scleroderma™ has been developed to support and guide you during your journey, by providing information and resources that you can trust, all in one place.
It summarizes the current scientific knowledge, latest news, and real-life experiences, and provides convenient resources to help you along the way.
I was always a runner and noticed it was getting more difficult to keep up with my routine. I know now that was scleroderma, but I still try and push myself to be active when I can and make the most of each day.
Derrett-Smith E, Denton C. Systemic sclerosis: clinical features and management. Medicine.
Varga J, Abraham D. Systemic sclerosis: a prototypic multisystem fibrotic disorder. J Clin Invest. 2007;117:557-567.
U.S. Food & Drug Administration. Orphan Drugs Act – Relevant Excerpts. Updated Aug 2013. https://www.fda.gov/forindustry/developingproductsforrarediseasesconditions/howtoapplyfor
orphanproductdesignation/ucm364750.htm Accessed May 2017.