Because scleroderma is so rare, you might not know much about it. It can be hard to find clear information on scleroderma and difficult to know what it all means.
More than Scleroderma™ has been developed to support and guide you during your journey, by providing information and resources that you can trust, all in one place.
It summarises the current scientific knowledge, latest news, and real-life experiences, and provides handy resources to help you along the way.
I realised I had a problem with my lungs when I couldn’t do the things I did before, like hiking in the mountains. But I take my time and enjoy doing what’s possible for me.
Derrett-Smith E, Denton C. Systemic sclerosis: clinical features and management. Medicine. 2010;38(2):109-15.
Varga J, Abraham D. Systemic sclerosis: a prototypic multisystem fibrotic disorder. J Clin Invest. 2007;117:557-567.
European Commission. Rare Diseases. https://ec.europa.eu/health/rare_diseases/policy_en Accessed July 2017.
U.S. Food & Drug Administration. Orphan Drugs Act – Relevant Excerpts. Updated Aug 2013. https://www.fda.gov/forindustry/developingproductsforrarediseasesconditions/howtoapplyfor
orphanproductdesignation/ucm364750.htm Accessed May 2017.