Rafaela’s Story


Following her diagnosis of scleroderma (also known as systemic sclerosis), Rafaela's future seemed uncertain, as little was known about the disease. Now Rafaela has come to terms with this rare disease and the oxygen tank that helps her deal with the lung involvement. Watch this short film to see how her loving family has driven her motivation to manage her disease and keep getting out in the fresh air, where she feels the most free.

scleroderma patient story rafaela
scleroderma patient story rafaela
scleroderma patient story rafaela
scleroderma patient story rafaela
scleroderma patient story rafaela

More patient stories

Discover more stories from people with scleroderma

Back to top