I have scleroderma

If you have scleroderma, you’re in the right place. Here you will find lots of information to help you understand the disease, including advice on managing your symptoms and moving forward with your life.

2 min read

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Scleroderma can affect everyone differently

Regardless of how scleroderma affects you, there are things you can do to manage your symptoms. There may not be a cure for scleroderma yet, but it can be treated and managed. With a combination of treatments and approaches, people with this condition are now living long full lives.

Scleroderma patient on the beach

Newly diagnosed?

A diagnosis of scleroderma can be difficult to come to terms with. But learning from others, leaning on those around you and making plans can help you maintain your wellbeing.

Woman with scleroderma outdoors

Scleroderma and lungs

It is important to determine if scleroderma is affecting your lungs as soon as possible. If you have lung symptoms, your doctor can help you find ways to lessen their impact on your life.

Thought of the day

Understanding as much as you can about the disease, can help you and your doctor make decisions that are right for you.

People sitting together

You are not alone

Several groups support and represent people with scleroderma. Get contact details for your local organisation.

Learn who is involved

The type of doctors and nurses you see will depend on your symptoms. Learn who might be on your care team.

Regular monitoring is important

Symptoms of scleroderma may change over time. Find out how regular monitoring can help keep the disease in check.

Find out treatment options

There is no cure for scleroderma but there is a range of treatment options that can help you manage your symptoms.