Emotional wellbeing

Caring for someone with scleroderma is different for everyone. Although there is no right or wrong way to feel, here you can find ways that may help you cope.  

2 min read

Woman with scleroderma with sister

Your relationship dynamic with the person you care for may change. Whether they are your husband, wife, grandparent, child, friend or neighbour, what you can give and receive from one another may alter. It may not be easy at first, but be open and honest with each other.

8 /10
people say that caregiving strengthens their relationships.1

Caring for someone with scleroderma can also be stressful at times—and that’s understandable.1,2

  • Someone you love is experiencing pain, discomfort or distress.
  • Illnesses like scleroderma are often unpredictable.3 You will have to look out for any new symptoms or problems.
  • If you take on extra responsibilities, your day-to-day life may have to adapt. This will put strain on your personal relationships and finances.

However, there are practical ways that may help you to manage your own stress and wellbeing. These simple changes don’t take much time but may make a big difference to how you feel.

  • Reflection

    Expressive writing and mindfulness have been shown to reduce stress and anxiety. See if you can fit these practices into your daily routine. 

    Woman with scleroderma with paintbrushes
  • Diet and exercise

    Caregivers often put their own health low on their list of priorities. But your health is more important than ever. Find out what you can be doing to keep your body healthy.

    Two women walking through park