Adjusting to your diagnosis

Having a diagnosis of scleroderma can be difficult, but you don't need to feel alone. Here you can find answers to some of the questions you may have about your diagnosis.

5 min read

Scleroderma patient on the beach

Scleroderma and you

For some people, diagnosis can be a relief because it helps explain the symptoms they have been having. However, it can also be scary. It's important to give yourself time to adjust, figure out how you feel and find out what you want to know.

While there is a lot we don’t know about scleroderma, there’s a lot you can do to manage your symptoms, so that you can continue doing the things that are important to you.

Substantial research is underway to unlock many unanswered questions and to find better treatment options for a diverse patient population.

"My diagnosis was a shock. I’d never heard of scleroderma before. I went on the internet and printed everything I could print off. So, that’s how I educated myself."
— Doris

You can’t make the disease go away, but you can learn how to manage it and find a way forward that works for you.

Coping with emotions

The emotional impact of scleroderma can be difficult to deal with. There is help out there and support on how to cope.

Woman looking out of window

How mindfulness can help

Mindfulness is an awareness of what’s happening in the present moment in your mind, body and the world around you. Evidence suggests that being mindful reduces stress and anxiety, while building resilience, so that you feel more able to cope with problems in the future.1,2

person writing on a notebook

Convey your emotions

Some people find that expressing themselves through writing a daily diary can really help to reduce their anxiety and manage stress.